Ready to be Back to Crazy Normal

When Craziness Falls from the Sky, What Do You Do?

Deal with It.

Yes.  Of Course.

This is What We Have Been Doing.

Tough?  Sure.

Nutty?  You Bet.

Feelings of Longing and Despair and Hopelessness?   Afraid So.

But the Flip Side of This???

A Family Together Who Will Remember and Appreciate Life.

Never, Ever Take it For Granted.

Crazy Long Hospital Stay?  Perhaps Finally Almost Done.

A Surgery?  Yes.

More Surgeries to Come?  Maybe.

Time Away from School.  Yes.

Mom Back at Work.  Yes.

Making the Best of Each Situation thrown Our Way.  You Bet.

Ninja Shows in the ICU… 🙂

Our Girl Trying to Stay Upbeat and Positive.  Trying.

Forward March.

One Day at a Time.

UGGH…I hate that saying…One Day at a Time…but I have to recognize it.

And You Definitely Know When You have Worn Out Your Hospital Welcome, When Your Bed is Moved to Make Way for the Electricians to Change the Light Bulbs.

I Know.  Crazy Magic.

17 thoughts on “Ready to be Back to Crazy Normal

  1. Crazy magic indeed. I’m sure you are so ready for this to be done. You have a marvelous strong family and I remain inspired by how you manage to cope with this and still be able to write so beautifully. I think we all learn from your courage and sharing. Sending hugs, j

    1. Oh dear. I SO get that. I’ve been struggling with IBS (irritable bowel syndrome) off and on since high school. It’s similar. Maybe a precursor? But it usually involves the large intestine, not the small. I have a friend who has IBD and says it’s due to an overgrowth of bacteria in the small intestine. It took them quite a while to diagnose him. He ended up going to the Mayo Clinic to get answers. He’s now handling it with diet and some medication. But it is an ongoing battle. Of course he’s much older. My age. I wasn’t aware they could do a surgery to fix that. She must get so discouraged. (I am half scared to death to go on this cruise in September because of the IBS…)

  2. Calen – you’re exactly correct…IBS is in the colon only…I’m talking like I know what I’m talking about, but this isn’t really true. She is being treated as having crohns…strictures in small and large intestines…but treatment can be the same for IBS and IBD. She is so tough and being so smart about all this…my strength is coming from her.

    1. As much as it pains us to see our kids with their limits, children are so smart and adaptable. I think of all the little kids I’ve seen at the Diabetes clinic who have Type 1. These kids give themselves shots daily at lunch at school. It freakin’ amazes me. Maybe this is one of those times when a little child shall lead them. I understand your strength coming from her. Still, it seems so unfair, doesn’t it… I guess I feel that in some way these kinds of medical issues rob kids of their childhood.

  3. I read the comments. I’ve been living with chronic inflammatory intestine for a long time and if you want to ask me some question, just send me a private email. Your daughter may want to send me an email as well. I’m a former dancer as well, and it’s weird to see that generations apart and oceans apart we have so much in common. I follow a diet that doesn’t heal, but helps a little.

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